Select Committee on European Union Minutes of Evidence


Examination of Witnesses (Questions 400 - 410)

THURSDAY 20 MARCH 2008

Dr Vivienne Nathanson and Dr Tony Calland

  Q400  Lord Trefgarne: We know there is an acute shortage of organs available in this country. You say that 900 people a year sadly die through lack of a suitable organ. We are asked to believe that infrastructure is not the issue in this case. Can we be sure that organs are not lost through the lack of a surgeon to remove the organ or the lack of a theatre in which he could do it?

  Dr Calland: I do not think we can.

  Q401  Lord Trefgarne: Is that significant?

  Dr Nathanson: I think the lack of infrastructure is almost certainly a major contributing factor at the moment.

  Q402  Lord Trefgarne: We have been told that before.

  Dr Nathanson: The most worrying is that we certainly could not benefit as significantly as we should from an increased number of donors if we do not increase the infrastructure. I am not using the word "improve" because that would suggest poor quality. It is not about quality; it is about numbers. It is about resources. It is about operating theatres; intensive care units; the numbers of transplant co-ordinators, the people to ask the question and people then to go through all the systems—and it is a very complex process—of making sure that this person is right for donation, that the family is comfortable, that the recipients are lined up, that the transport arrangements are in place, that the operating theatre time in all the other places is available.

  Q403  Lord Trefgarne: And the simple shortage of donors is only part of the problem.

  Dr Calland: Yes.

  Dr Nathanson: Absolutely. The first thing you have to do is to make sure that your infrastructure can cope with more donors.

  Q404  Lord Trefgarne: And at the moment it could not.

  Dr Nathanson: It is pretty borderline. It could not—certainly not a significant increase.

  Q405  Lord Trefgarne: Could it cope with another 900?

  Dr Nathanson: I doubt it.

  Dr Calland: Probably not.

  Dr Nathanson: Most transplant co-ordinators say that they are currently working absolutely at the edge of the limits of the constraints that they are under.

  Q406  Lord Trefgarne: With more than enough donors but just not enough—

  Dr Nathanson: No, even with 900 extra donors we would still probably have an increasing level of donor waiting lists. One of the things that is interesting about the donor waiting list is that people come off it because they are treated, people come off it because they become too ill—

  Q407  Lord Trefgarne: This is the recipient waiting list.

  Dr Nathanson: This is the recipient waiting list. People come off that because they are too ill to be treated now or because they die or because they are treated. But there is good evidence that people are not put on the list: when their condition is such that the doctors feel the chance of any donor being found or of organisationally getting them treated puts them relatively low in the list, in the hierarchy which has to be there, and therefore it is not worth currently putting them on the list.

  Q408  Chairman: Dr Nathanson, I am sorry to interrupt you, but we want to get to the core of some of this. Dr Matesanz who came to see us from Spain, the person who has really driven the co-ordination, suggested to us not to spend a whole lot of money on donor cards, advertising and all of that, but to concentrate the funding on the infrastructure until that was properly in place. If you were advising the Committee and we were looking at this European piece of advice we have had, if you like, what would your view be of that European bit of advice?

  Dr Nathanson: Number one, spend the money on getting the infrastructure right so that you can benefit from more donors. Once you have got your infrastructure in place then you move to presumed consent. Let us say that the UK could pass a law this month on presumed consent, it would take three or four years to get that in place because we would want this long period of getting people to understand and giving real opportunities to opt out. I think you go ahead with the debate upon the potential for the legislation as you get the infrastructure in place and as you put your infrastructure in place to deal with a significant increase in the numbers of donors and therefore of recipients.

  Q409  Chairman: We needed to have that on the record. That is what we are looking for.

  Dr Calland: Perhaps I might add that I think there is also an education issue in terms of staff working in A&E departments or medical assessment units or whatever. Their primary aim is to deal with the patient and get everything moving through the system, and I think opportunities are missed in the heat of a busy running, overheating A&E department, where people will perhaps die and potential donors are lost because people have not had the time or have not thought about it or whatever. That is no criticism of them and their professionalism. It is just one of the things, that this is another additional think to think about.

  Lord Lea of Crondall: There is one element which will have to be addressed in our report—and you did touch on it in a way which I found a bit surprising—which is the need for more publicity. You mentioned the Prime Minister's statement as being perhaps unhelpful. I do not normally rush to support the Prime Minister, although I am a member of the Labour Party, but I would ask you this question: Is it not the case that what he did succeed in doing is exactly what you demanded, that at dinner parties people started to discuss this? I do not go to a lot of dinner parties, but I can tell you that everybody was. Is that not a fair comment?

  Chairman: I think the point is made. We do have to change over, otherwise we will not hear from our second set of witnesses.

  Q410  Lord Lea of Crondall: Could you just give a brief answer to that?

  Dr Calland: I do not think it was the Prime Minister's fault. I think it was the Daily Mail and radio stations, where it just disappeared into hyperbole.

  Chairman: Could I say thank you very much indeed. I just would just like to say one more sentence to you, the other thing our Spanish doctor said to us when we asked him what was stopping things happening in this country. He thought for a minute and he said, "Well, you have a very old, established Health Service." It may be that people like you have a chance to make change happen, but he was saying to us that there is inertia in our system because people do not like change. I just say that as a piece of evidence we had because I think people in your position are helpful in trying to help those changes come abut. Thank you very much indeed for coming. We are very grateful.






 
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